National Association for Rights Protection and Advocacy

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Daily Workshop, Keynote, and Plenary Schedule and Descriptions*

November 1-4, 2001, Holiday Inn Select, Niagara Falls, NY

Thursday, November 1, 2001

7:00 - 7:15 p.m.
Welcome: Ron Bassman, NARPA Board President, Albany, New York

7:15 - 8:30 p.m. International Human Rights: Opportunities for Action
Eric Rosenthal, J.D., Mental Disability Rights International, Washington, D.C.
Introduction: Laura Prescott, NARPA Board, Sarasota, Florida

Drawing on investigations in Latin America and Eastern Europe, Rosenthal will describe patterns of discrimination and abuse documented by Mental Disability Rights International (MDRI). He will critique the role of international human rights organizations, the United Nations, US foreign assistance, and
privately-funded humanitarian relief efforts in responding to and perpetuating abuses against people with mental disabilities. Rosenthal will discuss the tremendous importance and serious limitations of existing protections under international human rights law. Reviewing developments in the international system expected over the next few years, and growing interest in a convention on the rights of people with disabilities, Rosenthal will urge activists to get more involved with international advocacy.

Friday, November 2, 2001

8:30 - 10:00 a.m. A Celebration of the Life of Rae Unzicker
Moderators: Judi Chamberlin, National Empowerment Center
Laura Prescott, Sister Witness International

Rae Unzicker's passion for social justice, her ability to inform, engage and mentor people has changed the landscape of options for people labeled with psychiatric disabilities. A panel of rights activists, including Marca Bristo, Susan Stefan, Ron Bassman, Tom Behrendt, Laura Prescott, and Judi Chamberlain, will reflect on Rae's accomplishments and consider ways of continuing her efforts at developing cross disability alliances. And of course, this panel will not neglect to recount the outrageous humor and irony so integral to Rae's work.The session opens with a song followed by a short reading of "To Be A Mental Patient" written by Rae. The panelists will share their comments and reflections followed by an opportunity for the audience to comment using an open microphone format. We will close the session with a song to say goodbye and thank you to one of our great leaders and friends.

10:30 - 12:00 noon Workshops I

Competence: What Does it Mean and Why is it Important?
Bob Fleischner, J.D., Center for Public Representation

This workshop will review the various legal and clinical meanings of "competence" and "capacity" and discuss how and why they are important in the mental health system. Topics will include informed consent, competence to consent to treatment, advanced directives, and competence to stand trail.

From Privileges to Rights: People Labeled with Psychiatric Disabilities Speak for Themselves
Marca Bristo, National Council on Disability
Judi Chamberlin, National Empowerment Center

In 1998 at NARPAs annual conference in Albany N.Y., the National Council on Disability (NCD) conducted a public hearing to take testimony on peoples experiences with mental health services. From that testimony, NCD produced its report, Privileges to Rights: People Labeled with Psychiatric Disabilities Speak for Themselves. The report with its recommendations was submitted to the President of the United States and Congress. The presenters will briefly discuss the findings of the report. The main focus of this workshop is to gather input from people as to how and where NCD can direct further efforts so that people labeled with psychiatric disabilities can expect to claim their full citizenship rights. The comments and recommendation of workshop participants will be utilized in realizing the goals of the original report.

Why the Psychiatric Survivor Movement Ought to Care About Fair Housing Protections (Rights and Legal Strategies)
Michael Allen, J.D., Bazelon Center for Mental Health Law
David Popiel, J.D., Community Health Law Project

Having a psychiatric disability (or a label) is often associated with being very poor and having limited housing options. An entire "secondary housing market," comprising group homes and other congregate living arrangements which has grown up in part because the mainstream housing market has been so unresponsive to consumers and survivors. We aim to tackle three critical questions facing poor people with disabilities:

I. What are the housing implications of the Supreme Courts Olmstead decision, and what opportunities exist for advocates?
II. Can the reasonable accommodation provision of the Fair Housing Act be used to overcome landlord policies that exclude poor people with disabilities (e.g., No Section 8, minimum income, No co-signers and credit and landlord reference standards) and get more people into the mainstream rental market?
How have recent court decisions under the Fair Housing Act helped or hurt people with psychiatric and other disabilities?

Biopsychiatric Ideology as an Impediment to Recovery
Loren Mosher, M.D., Soteria Associates

The currently fashionable myths explaining the "causes" of madness are a powerful foe to the development of hope for those designated as "mentally ill". If madness is construed as a genetically determined, biochemically mediated, "brain disease" where is the place for self-help, empowerment, and recovery in this scenario? Until this ideology is confronted on both an intellectual and practical level, concern for the wishes of system users will remain a sop tossed by those who have created this zeitgeist psychiatry, NAMI and the drug industry. A 30+-year veteran of these ideological wars will facilitate a discussion focused on developing a strategy to deal with this biopsychiatric religion.

The New York Shock War: Report from the Front Lines
Dennis B. Feld, J.D., and Kim L. Darrow, J.D.

Electroshock treatment has been heavily promoted in recent years by the American psychiatric establishment. Although the procedure itself remains highly controversial, and the adequacy of informed consent protocols is widely questioned, electroshock not only continues to be widely used; in some jurisdictions, such as New York State, it is increasingly being forced upon individuals over their objections and the objections of their families. This workshop will examine several New York cases in which individuals have attempted to prevent or stop the involuntary administration of electroshock treatment.

Advocacy 101
Yvette Sangster, Advocacy Unlimited, Inc.

The founder and first Executive Director of Advocacy Unlimited, Yvette Sangster, will present a workshop on the basics of a subject that she knows very well advocacy. Yvette has helped Advocacy Unlimited to become a nationally recognized model for advocacy education and activism within the mental health system. As a consultant, she has presented workshops on a wide variety of topics related to advocacy, including personal empowerment strategies, consumer education, systems redesign, advocacy program development, legislative advocacy, coalition-building, and network development.

Luncheon Keynote
In Our Own Voice: African American Stories of Oppression, Survival and Recovery in Mental Health Systems
Vanessa Jackson, Healing Circles, Inc., Atlanta, Georgia
Introduction: Celia Brown, NARPA Board, Bronx, New York

Vanessa Jackson, author of In Our Own Voice: African-American Stories of Oppression, Survival and Recovery, will explore the value of history and narratives as a tool for empowerment and healing for psychiatric consumers/survivors/ex-patients. The history of a people is generally told from the perspective of the dominant group, which is invested in obscuring its violations and brutality. It is an act of extreme courage and resistance for historically marginalized individuals and groups to honor our truths and our history by passing those stories on to others. Ms. Jackson will discuss the healing potential of moving through the pain of telling our own stories and the gift that we offer to others when we invite them into the circle to share their stories.

1:30 - 3:00 p.m . Workshops II

Restraint: New Rules, New Advocacy Opportunities
Bob Fleischner, J.D., Center for Public Representation

Congress and the Department of Health and Human Services have established new federal rules for restraint in a variety of mental health and medical settings. This workshop will explain the federal rules, describe the roles of the Center for Medicaid and Medicare Services (HCFA) and the protection and advocacy programs in enforcing the regulations, and suggest strategies to reform restraint practices at the state level.

Involuntary Outpatient Commitment in New York After 2 Years
Kim L. Darrow, J.D.
Ellen Lawson, J.D., Neighborhood Legal Services
Aileen McNamara, J.D., New York Mental Hygiene Legal Service

In 1999, the New York State Legislature enacted an involuntary outpatient commitment (IOC) law, known as "Kendra's Law". This workshop will examine the predominant practices and trends in the operation of the law so far, including disparate approaches in different areas of the state, as well as case law developments, including constitutional challenges to key features of the statute.

Exorcising the Demons of Normality Creatively
Anne Feeney and Chris Chandler, Activists and Singers/Songwriters

Chris Chandler has represented three cities in the National Poetry Slam and logged almost a million miles on the thin highways of fat America, telling the stories of the disenfranchised with insight, humor and energy. His partner, longtime activist Anne Feeney, is a cultural worker in the labor, economic justice, disability rights and human rights movements. Both believe deeply in the power of art visual, musical, spoken word, puppets, cartoons to effect change and challenge the "demons of normality."

Peer Support and a Socio-Political View of Trauma and Abuse
Shery Mead, M.S.W., Shery Mead Consulting
Lorae Boisvert, Granite State Monarchs

Since peer support programs, by definition, have a different view and different response to mental health issues in general, it is entirely appropriate that they should help de-construct the pathology model and, instead, help people re-construct the meaning abuse has had in their lives. Perhaps anger will need less "management" and depression can be re-defined as oppression. By providing both non-assessment based "witnessing," and advocacy, peer programs are in the unique position to "name" the abuse rather than to further pathologize the victim.

The Challenge of Implementing a PACE (Recovery) Philosophy in the Public Mental Health System
Laurie Ahern, National Empowerment Center
Daniel Fisher, M.D., Ph.D., National Empowerment Center

Many public mental health systems give lip service to a recovery based approach. However, in reality, full recovery, which is characterized by independence from the Mental Health System, conflicts with the covert mission of the mental health system which is social control.

The PAIMI Project, Year One and Beyond
Susan Aranoff, J.D., Connecticut Legal Rights Project
Laura Ziegler
Bill Stewart, former director of Kentucky P&As Mental Health Unit
Judi Chamberlin, National Empowerment Center

At the 2000 NARPA Conference, the Board of Directors voted to support an initiative to design and test ways to meaningfully and objectively assess efficacy of Protection and Advocacy for Individuals with Mental Illness (PAIMI) programs. This workshop will begin with an update on that effort, and explain why it was undertaken. The panelists have worked for PAIMI programs (as executive director, staff attorney, and paralegal) or been part of their governance. The discussion will include: how to tell if your P & A is providing quality legal services; conduct your own investigation; obstacles to effective advocacy and governance; and how one exemplary program works. We hope to both acknowledge existing deficits in PAIMI and explore possibilities for constructive change.

3:30 - 5:00 p.m. Workshops III

Mental Health Courts
Michael Allen, J.D., Bazelon Center for Mental Health Law
Peter Nimkoff, J.D., Advocacy Center for Persons with Disabilities

Peter Nimkoff will open with a Floridian's front-line perspective on those who have a mental illness and no money, and are criminally accused. Michael Allen will speak about (1) trends in national mental-health courts and treatment, citing Seattle and Alaska, (2) issues concerning current research, and (3) lessons learned in kindergarten about earlier intervention. Ample time will be allowed for questions and dialogue.

Dancing With Power: The Art of Leadership in Social Change
Vanessa Jackson, Healing Circles, Inc.

Dancing with Power is an interactive workshop, which explores the challenges and opportunities of leadership in social change movements. The workshop will provide an overview of the three aspects of power, internalized oppression and the art of asking for help. There will be an opportunity for small group dialogue and support in developing individual leadership plans. Our movement cannot thrive without conscious leaders and a process for developing new and diverse leaders. Participants are encouraged to share their wisdom and strategies to help us expand the leadership pool in our organizations. This workshop is great for established and emerging leaders.

Subversive Spirituality: Why Mad Pride Yanks at the Historic Roots of Psychiatry
Phil Schulman and David Oaks, Support Coalition International

Heal normality, naturally! Begin with a Mad Pride tour of the historic roots of psychiatry: Yes, mystics were one of psychiatry's first targets, but why? If psychiatry's victims and critics are "heretics," then exactly what "religion" was psychiatry created to defend? Next, participate in a strategy session about how personal spirituality and alternatives to psychiatry are still targeted today. Why have psychiatric survivors always remained a threat to the "dominant delusion"? Lets figure out together what effective actions can be taken. Learn how to be in charge of creating a personal spirituality that can reduce or eliminate dependency on psychiatry.

Voluntary Should Mean Voluntary: Why Involuntary Outpatient Commitment (Assisted Community Treatment) is Inconsistent with the Olmstead Decision
Kathie Zatkin, M.S.W., J.D., Alameda County Network of Mental Health Clients

Olmstead v. L.C. was a 1999 Supreme Court decision emphasizing community
integration, discrimination, and patient/client choice. Proponents of involuntary outpatient commitment claim that the denials of liberty, freedom, and dignity inherent in assisted outpatient treatment are compatible with Olmstead. NAMI is working hard to see that Involuntary Outpatient Commitment (IOC) is made part of States Olmstead plans. In CA, IOC proponents draft, introduce, amend and reintroduce legislation that weakens due process. So-called findings are incorporated into statute and the concept of voluntariness is rendered meaningless. From a rights perspective, the language of Olmstead is not entirely positive. We will use Olmstead to interactively explore the use of language and the dangers that lurk when policy makers and others are given carte blanche to re-define words and phrases to suit their agenda. The goal of the workshop is to develop strategies to demonstrate that although outpatient commitment does occur outside of an institution, the terms of the commitment are the antithesis of Olmstead/ADA.

Documenting the History of Our Movement: Oral Histories and Archives
Moderator: Darby Penney, Historical Projects, New York State Office of Mental Health
Presenters: Oryx Cohen, Support Coalition International Oral History Project
Steven Periard, Consumer/Survivor/Ex-patient Oral History Project
Terry Strecker, Consumer/Survivor/Ex-patient Oral History Project

The available historical records concerning psychiatry are almost exclusively from the perspective of the system. This workshop will discuss the importance of documenting the stories of individuals who have experienced the system, and the history of organizations working for the human and civil rights of these individuals, as a way to begin to balance the historical record. Darby Penney will present information on how organizations can create their own historical archives. Oryx Cohen will discuss Support Coalition Internationals (SCI) Oral History Project, which has a web based component; Steven Periard will discuss New Yorks C/S/X Oral History Project, which places oral histories in the State Archives. Film clips from SCIs interviews will be shown, and Terry Strecker will present his film, Safer in the Street, drawn from oral history interviews.

The Pretextual Nature of Psychiatric Evaluation
William Brooks, J.D., Mental Disability Law Clinic, Touro Law Center

Psychiatrists simply do not want to be governed by legal requirements. Accordingly they will tailor their clinical assessments to conform to the law and when possible, tailor the law to their clinical choices. This workshop will examine the pretextual nature of psychiatric evaluations and address legal strategies to challenge this practice.

7:30 - 9:30 p.m. Friday Evening Oral History Open Forum
Facilitator: Darby Penney, Historical Projects, NY State Office of Mental Health

Collecting oral histories of peoples experiences in the mental health system is an important way to document individual human rights abuses as well as systemic problems. Oral histories can also serve to document the history of the consumer/survivor/ex-patient (c/s/x) movement. Many c/s/x report that giving an oral history can be a cathartic and empowering experience. This open forum will provide c/s/x's with the opportunity to present their oral histories before a group; for those who wish, their oral history can be audiotaped or videotaped. Because of time limitations, people are asked to limit their presentations to 15 minutes.

Saturday, November 3, 2001

Morning Keynote
8:30 - 10:00 a.m. Two Perspectives on Activism
Lisa F. Daniels, Reading, Massachusetts
Katherine Hodges, Mad Lib, Chicago, Illinois
Introduction: Laurie Ahern, NARPA Board, Lawrence, Massachusetts

Lisa's illustrated presentation will document the Americans with Disabilities Act as a "frontier in history." She will discuss her experiences in researching and educating about the ADA and the issues surrounding equality for people with disabilities.
Katherine will discuss how her experiences with psychiatry convinced her of the importance of involving younger people and outpatients in the struggle to transform or resist the mental health system. She will encourage creative ways to challenge coercive, medical model psychiatry, and share ideas to develop theory and practice linking the psychiatric consumer/survivor movement to other movements for social change.

10:30 - Noon Workshops IV

The Mutual Recovery Paradigm: A Means of Personal and Societal Transformation
Cheryl Stevens, M.D., Director, Office of Consumer/Survivor/Ex-Patient Relations, Department of Mental Health, Western Massachusetts

This workshop will explore the mutually reinforcing relationship between spirituality (those intangibles that create meaning in ones life) and recovery from extreme states. We will explore the healing nature of fostering relationships with the body/mind, other individuals, an Absolute, and ones surroundings to enhance well being. We will first consider the tragic nature of the psychiatric odyssey in the latter half of the twentieth century. Then participants will be invited to consider the nature of mental illness as no more pathological than pregnancy, and the impact that this paradigm shift has on people in distress, those who love us and work with us and on society at large at it struggles with multicultural inclusion. In the dance of mutual recovery or mutual growth, we care for ourselves with compassion in times of suffering and trust in the recovery process so we can better listen to people in extreme states.
Experience has shown that the psyche knows when and what to do if given the space and the grace in which to do it. Listening can be the technology of transformation that allows some of our most talented and vulnerable citizens to teach us how to embrace our sensitivities in an often-insensitive world. As heart speaks to heart the twenty-first century closes a painful (and costly) chapter in excluding people with cognitive, affective, perceptual and behavioral differences as we all have something to learn from one another.

Durable Powers of Attorney: Shifting the Paradigm from "Best Interest" to "Substituted Judgement;" What DPOAs Are, How They Work, and How to Enforce Them
Xenia S. Williams, DPOA Agent
Beth A. Danon, J.D., Vermont Protection & Advocacy

The presenters will discuss the use of Durable Powers of Attorney for Health Care in psychiatric settings. The discussion will center on what DPOAs are and how they can be used to effectuate real treatment choices in involuntary treatment settings wherein the patient is treated as if they lack capacity to make their own treatment choices. They also will explore how DPOAs can be used to shift the existing paradigm of treating psychiatric patients under the "best interest" model to the "substituted judgment" model. Finally, they will offer suggestions on how to enforce a DPOA when the provider refuses to honor it. Materials shall consist of copies of the pleadings and settlement agreement of a case the presenters litigated, R.R. and Xenia Williams v. VT State Hospital et al., wherein they achieved a settlement that included damages and real protections for the patient, including but not limited to, ward rights, medication preferences, records access, and discharge planning.

International Perspectives on Human Rights Advocacy
Eric Rosenthal, J.D., Mental Disability Rights International
Judi Chamberlin, National Empowerment Center
Activists from the United States, Hungary, Russia, Lithuania and Kosovo

This workshop will bring together a panel of activists from the United States, Hungary, Russia, Lithuania and Kosovo to discuss strategies that have proven effective in promoting human rights, as well as common barriers to effective advocacy. In addition to learning from the experiences within other countries, participants will discuss how international networks can be established to promote improved exchange of information and collaboration across countries. Workshop participants will also discuss the role of psychiatric survivors and other disability rights activists in international organizations and at the United Nations. We will use the workshop to formulate a strategy of action to promote international human rights law and the development of policies that are more responsive to the concerns of people with disabilities.

Pursuing an Activist Agenda at a Mental Health Agency: An Assessment
Ken Schlosser, M.S.W., Advocates, Framingham, Massachusetts

For over five years, Ken Schlosser, as a consumer/ practitioner and clinical manager and Pat Deegan, as a consumer activist consultant, have sought in a range of ways to challenge and change the practices of a large mental health residential division in a nonprofit agency in Massachusetts. Their efforts have been primarily, though not exclusively, focused on staff and management. It has been a struggle with some surprising achievements and significant disappointments. The work has included an anti-mentalist task force; anti-mentalist events; a consumer practitioner support group; a pilot for organized yearly evaluations of staff by clients; a series of performance standards for staff that push empowerment, respect and choice at a high and nontraditional level; and an attempt to establish a full time consumer advocate with a job description that establishes more autonomy and power than is traditionally the case. The effort has raised useful questions: 1) Are mental health agencies viable spaces to push an activist agenda? 2) Should the survivor movement make more efforts to engage the many closeted consumer-practitioners that staff mental health programs and can they partner effectively with clients? 3) How far can relatively progressive nonconsumer practitioners be pushed to more emancipatory practices; what draws them to empowerment and anti-mentalism and what holds them back? 4) Are there ways to counsel and support clients in a traditional setting that are more reflective of our values 5) Are there changes that can be promoted in the culture and decision-making patterns of mental health agencies that make a difference in clients capabilities to be self-determining. A description and assessment of these efforts will be provided with the hope that they are relevant for other struggles and raise useful general questions for movement strategy.

The Human Rights Authority: Illinois Guardianship and Advocacy Commission
Bruce Berry and Susan White, R.N., M.S.N., Illinois Guardianship and Advocacy Commission

The Human Rights Authority is a state-funded, citizen advocacy program that protects the rights of persons with disabilities. Eligible persons include individuals with mental illness and/or developmental disabilities, as well as persons with mental and physical impairments associated with aging. The Human Rights Authority is a model advocacy program that includes consumers, concerned citizens, families/guardians and service providers. The presentation will discuss the types of rights issues that the Human Rights Authority investigates and how the process can benefit people with disabilities and their families/guardians. Sample case studies and a review of the investigative process will be discussed. The presentation will conclude with a description of how the Human Rights Authority can help promote positive changes in the system which provides services to people with disabilities.

Recent Developments in Mental Health Law
Susan Stefan, J.D., Center for Public Representation

This presentation summarizes significant recent developments in mental health law, including the Americans with Disabilities Act.

Luncheon Keynote
A European Perspective on Human Rights
Gabor Gombos, Voice of Soul, Budapest, Hungary
Introduction: Judi Chamberlin, NARPA Secretary, Lawrence, Massachusetts

Throughout the world, people with mental retardation, elders with dementia, and people of all ages who suffer from psychological illnesses, from depression to schizophrenia, are regularly abandoned to a life of discrimination. They are often locked away in insane asylums where degrading conditions include pervasive inactivity, filthy spaces, and the use of physical restraints, including confinement to cages. They are denied adequate privacy, medical and dental care, food, water, clothing, blankets, and heat; rehabilitation and reintegration into society are rarely the goals of their treatment, medications are chronically overused and misused, and there is almost a complete failure to provide informed consent for treatment and experimentation. The chronic shortage of resources includes a serious lack of trained staff, and few avenues of complaint for violations against this most vulnerable and marginalized segment of society. Gabor Gombos knows these conditions all too well. Between 1977 and 1990 he was confined four times to psychiatric wards in Hungarian hospitals. He emerged determined to overhaul psychiatric care, first in his country and then across Europe. To this end, Gombos cofounded the first NGO active in Hungarian mental health issues (EGISZ, the National Family Association of the Mentally Ill) in 1993, and the following year, cofounded Voice of Soul, Hungarys first NGO for ex-users and survivors of mental health facilities, where he still serves as chair of the board. Gombos is also a member of the board of directors of the Users, Ex-users, and Survivors of the Psychiatry Movement in Europe, and the European Network on Constraint and Collaboration in Psychiatry, and is on the editorial board of Out Loud. He is cofounder of the Hungarian Mental Health Interest Forum. Gabor Gomboss tireless work on behalf of people with mental illness has helped end the previous damaging and derogatory practices of that time and brought the human potential of those with mental disabilities into the light at last.

1:30 - 3:00 p.m. Workshops V

Minimizing Symptoms from Neuroleptic Damage
Larry Plumlee, M.D., National Coalition for the Chemically Injured
Sonja Kjaer, Tardive Dyskinesia-Tardive Dystonia National Association

Persons suffering tardive dyskinesias and tardive dystonias (TD) often experience worsening of nervous system symptoms when exposed to common toxic chemicals in low concentrations, such as occur in tobacco smoke, pesticide residues, solvents, new carpet, perfume and food additives. Participants will have an opportunity to share such experiences. Milder forms of neuroleptic damage cause symptoms such as difficulty concentrating, lassitude, dizziness, fatigue, excitability, and/or muscle aches, after exposure to common chemicals. Taking control of one's environment can eliminate or minimize these symptoms, and optimize health and intelligence.

What About the Women? Questionable Protections
Laura Prescott, Sister Witness International

During the period of psychiatric deinstitutionalization, there has been a 273% increase in the number of women detained in US jails and a 110% increase in the number of adolescent girls detained, most of whom are poor people of color. Women in institutions all over the world face gross violations of their human rights, epidemic rates of violence, loss of child custody, right to marry and bear children and yet gender and culturally-specific concerns are often seen as 'secondary' 'specialty' issues pertaining to a 'sub-population' of people rather than the central crux of human rights discussions.
This workshop underscores the need women to occupy a central place in all human rights discussions if we are to work toward achieving full citizenship. The facilitator will also address the ways violence against women is re-enacted when some of the following gender-specific issues are not addressed in policy and practice: the right to marry, reproduce, maintain child custody, differential female toxicity levels in response to medication, increasing use of ECT on pregnant and older women; inadequate protections from sexual assault within institutions.

Discrimination or Stigma: Which Should We Be Fighting?
Judi Chamberlin, National Empowerment Center

"Stigma" will not be overcome by public relations campaigns or by attempts to give people more positive feelings about those labeled "mentally ill." Discrimination against labeled people is real and is the principal cause of stigma. Therefore, only campaigns promoting equal rights and justice will have a real and meaningful effect in overcoming stigma.
Discrimination against people labeled mentally ill takes many forms: laws that provide for involuntary treatment, practices restricting employment opportunities, and the like. In addition, the pervasive media images of people with mental illness and dangerous and unpredictable create a climate in which it becomes increasingly difficult for people known to have psychiatric diagnoses to pursue the ordinary things in life: living where one chooses, obtaining an education, maintaining a career, and so forth.
This presentation will discuss the struggle for equal justice and basic human rights that has been led by psychiatric survivors/users/consumers in many parts of the world. It will describe our analysis of what is needed to insure that a diagnosis of mental illness does not condemn people to second class citizenship.

The Qualified Immunity Defense in Section 1983 Litigation
William Brooks, J.D., Mental Disability Law Clinic, Touro Law Center

The workshop will first address the legal standards governing qualified immunity defense. It will then focus on the application of the objective reasonableness prong to claims by institutionalized individuals labeled mentally ill.

Emergency Rooms
Susan Stefan, J.D., Center for Public Representation
Peter Stastny, M.D., Albert Einstein College of Medicine

This workshop will be dedicated to brainstorming possible solutions to specific problems related to the treatment people receive when they go to emergency rooms for help with emotional or psychiatric crises. We will outline four or five major issues and explain why there is virtually no litigation against emergency rooms in the psychiatric context. We will discuss Scherer v. Waterbury Hospital, the single ADA case involving emergency rooms so far, and examine whether it can be duplicated in other states. Dr. Statsny will outline his experience with emergency rooms in New York, especially Bellevue Hospital.

3:30 - 4:30 p.m. Membership Meeting

Saturday Evening Discussion
7:30 - 9:30 p.m.  Legal Advocacy: An Open Dialogue about Serious Limitations and Need for Bolder Approaches
Facilitated by Peter Stastny, M.D., Albert Einstein College of Medicine, and
Tom Behrendt, J.D., Connecticut Legal Rights Project

We need to talk about developing bolder strategies to confront the sources and language of psychiatric mystification and power. How can we best synergize and use the expertise of lawyers and lay advocates in collaboration with allies among mental health professionals, psychiatric survivors and family members to address
political/psychiatric injustices.
We invite and encourage everyone to attend and engage in discussion with Michael Allen, J.D., Ira Burnim, J.D., Dennis Feld, J.D., Kim Darrow, J.D., Susan Stefan, J.D., Tom Behrendt, J.D., Emmett Dwyer, J.D., Kathie Zatkin, J.D., Beth Danon, J.D., Judi Chamberlin, Laurie Ahern, Gabor Gombos, Dan Fisher, Laura Prescott, Harvey Rosenthal, Anne Krauss, David Oaks, Celia Brown, Ron Bassman, Darby Penney, Don Weitz, Laura Ziegler, Ken Barney and others.

Sunday, November 4

8:30 - 10:00 a.m. Workshops VI

Perspectives from African-American Women Survivors: Using Advocacy to Fight Stigma & Discrimination for Ourselves
Jackie McKinney, National People of Color Consumer/Survivor Network
Celia Brown, Director of Peer Specialist Services, NARPA Board Member

This workshop will address how advocacy, choice, and rights are a part of our healing process and present strategies to combat discrimination faced by African-American consumer/survivors and people of color.
The presenters will offer perspectives and dialogue on (1) Barriers for African-Americans exercising their human rights; (2) Finding your voice through the maze of mental health, substance abuse and criminal justice systems; (3) Activism as a tool for individual empowerment; (4) Leadership Development; (5) Self-help strategies; and (5) Community organizing and outreach.

Research on Advance Directives
Peter Stastny, M.D., Albert Einstein College of Medicine
Michaela Amering, M.D., University of Vienna

We would like to review the research that has been reported pertaining to the issue of advance directives in mental health. This is a relatively small area and we would like to provide the example of a study we conducted with mental health professionals regarding their preferences for future treatment. Considering all the research that is being conducted on disempowering interventions, such as AOT, PACT, the experience of coercion, etc., we want to discuss what kind of research might be more conducive to understanding the choices and decisions that service users are making regarding their mental health treatment and recovery strategies.

Grassroots and Legislative Advocacy
Harvey Rosenthal, New York Association of Psychiatric Rehabilitation Services

Harvey will share a variety of lessons learned from a decade of helping to organize local, state and national grassroots advocacy efforts, including opposing forced treatment initiatives and supporting proposals for community mental health services funding (the Community Reinvestment Act), work incentives legislation (the Medicaid Buy-In), the MTA Half Fare Fairness Act, etc.

The ALMA Project: Empowering Mothers during Pregnancy, Birth and After
Sue Jarboe, Peer Networking Group, Doulas of North America

This workshop will:
- give an overview of the ALMA project, a new peer run initiative that provides support and advocacy to Moms who are consumers, survivors, ex-patients. We also provide doula support during pregnancy, birth and postpartum.
- provide factual information and practical ways to take control and empower yourself when dealing with the obstetric and psychiatric systems
- create an opportunity for sharing our stories and really listening to each other to continue our healing.

Four Innovative Projects on Advocacy & Empowerment in QuÈbec

In this workshop, you will learn about four different on-going projects that are empowering survivors/consumers. These endeavors all have in common that users are involved in different ways: from taking the lead to being full-fledged participants. I am personally involved in two of these innovations, and remain informed about the others through exchanges with the originators and participants. The fact that the four initiatives involve activists from all regions of QuÈbec illustrates a strong commitment and united voice.

Update on Implementation of Olmstead Around the USA
Ira Burnim, J.D., Bazelon Center for Mental Health Law

Ira Burnim will be discussing the findings from surveys and informal monitoring of Olmstead implementation, as well as relevant legal and political developments.

10:30 - Noon Workshops VII

Let's Argue: A Value Exchange
George Ebert, Mental Patients Liberation Alliance

Issues of peoples choices and coercive psychiatric treatment should be of concern. This workshop provides a forum for participants to explore, to be challenged, and maybe liberated from traditional perceptions.

Solitary Confinement: How to Escape Legally
Emmett Dwyer, J.D., Advocacy Unlimited

If a prison inmate "misbehaves" he/she may be placed in solitary confinement for periods of time ranging from several days, weeks, or months to several years. A rising percentage of prison inmates have a DSM diagnosis, and placing them in solitary confinement for several months may be detrimental to their well being, yet this is a common practice in many states. Furthermore, the very behavior which the prison authorities characterize as misbehavior may be little more than behavior which is consistent with the person's diagnosis; for example, if a person attempts suicide by cutting their wrist, they may be charged with possession of a weapon and given several months in solitary confinement.
This workshop will explain administrative appeals that can be utilized to review the decision to place an individual in solitary confinement and it will discuss the Constitutional standards that prison authorities must use when deciding to place a person in solitary confinement. The objective of this workshop is to teach workshop participants how to file an administrative appeal that might free someone from solitary confinement, and expunge their disciplinary record so that they present themselves as suitable candidates when/if they appear before the parole board.

Evolution of a Drop-In Center: Overcoming the Obstacles
Ellen Lawson, J.D., and Karen Welch, J.D., Neighborhood Legal Services,
Jack Guastaferro, Restoration Society, Inc.

This workshop will focus on the practical, political, and legal aspects of opening Harbor House, a drop-in center in Buffalo, New York. Harbor House is run by a staff of mental health survivors and is a resource for adults who struggle with mental illness and homelessness. Harbor House was the subject of a controversial lawsuit in Buffalo when the Buffalo Common Council, responding to community animus against persons with mental illnesses, used zoning laws to prevent it from opening.
Jack Guastaferro, the Executive Director of Restoration Society, Inc., which runs the drop-in center, will talk about the practical and political aspects of opening the drop-in center. He will discuss navigating through zoning procedures that are often meant to restrict certain groups of people within areas of the city.
Ellen Lawson and Karen Welch will discuss Restoration Society, Inc., et. al. v. City of Buffalo. Legal issues, including the Americans with Disabilities Act, will be discussed. Legal strategies for combating adverse zoning decisions will also be discussed.

The ADA Under Attack: Life After University of Alabama v. Garrett
Ira Burnim, J.D., Bazelon Center for Mental Health Law

Ira Burnim will be discussing the legal challenges that have been raised to requiring states to comply with the ADA, and the possibility that, under the banner of states' rights, much of Title II of the ADA (the sections that apply to state and local government) may be declared unconstitutional.

* Workshops subject to change.

Brief biographies of presenters

More on NARPA 2001 logistics, speakers, and presentations

Schedule: summary of workshops & presentations - with hyperlinks